Welcome to the official online home of
The Ashlyn Horry Foundation!


My daughter Ashlyn Horry was an inspiration to everyone who had the privilege of knowing her, including myself.  Her strength, courage and loving spirit live on through her foundation, her family and the entire special-needs youth community. 

While browsing the site, be sure and subscribe to my blog, which will provide updates on 1p36 Deletion Syndrome research and conferences sponsored through 1p36 Deletion Support & Awareness, tips for parents and caregivers of special-needs children, events, announcements and exclusive commentary about my memoir, Glamorous Sacrifice – Life in the Shadow of Championships.

The Ashlyn Horry Foundation is my way of honoring Ashlyn’s seventeen years on earth, and the precious legacy she left permanently embedded in the hearts and minds of many.  Thank you for spending time learning and sharing about 1p36 Deletion Syndrome and other conditions affecting special-needs children.  It is my sincere hope (and a longtime dream) that our foundation will continue to grow and positively impact people on both a national and global scale.

Warmest Regards, 
Keva D. Horry


The Ashlyn Horry Foundation Vision Statement

“We envision a world where children with medically diagnosed disabilities are enjoying the same quality of life as children without disabilities. This includes a life filled with love, joy, laughter and opportunities to contribute positively to society. Our vision is to enhance existing resources for disabled youth through economic relief, widespread awareness and medical research.”


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